Two Minds are Better than One

We made it safely to Houston and back earlier this week! Whew! I am so thankful the husband was able to accompany me this time.  It was a quick and exhausting trip, but it is much better having him with me! We were able to use his memorial day holiday to travel there so he only had to take off one day!

Just as I expected, Dr. C did agree with the cecostomy.  He said there is an 80% chance of success with a cecostomy.  And while there are not actually 100 Beckett's out there, those are pretty good odds.  He was very interested to hear all about what has gone on this past year since we last saw him.  He was in agreement with the cecostomy, but thought he would one up Dr. S and throw in a G-tube.  So Dr. C and Dr. S (GI- Dallas) will discuss adding a G tube as well while he is getting the cecostomy.  Dr. C believes that the G tube would be helpful in venting some of the air/gas out of Beckett's belly to help control the distention.  Also, with Beckett's past records in both feeding and fluid requirements, he thinks it would be good to go ahead and do the G-tube for the days when he does need it.  His thought is that as long as he is on the operating table, and a G-tube is a fairly basic thing, why not go ahead and do it? However, it doesn't really feel that simple to me.  If that is what they decide would be best for Beckett and his health, then of course, we will go with it.  The G-tube is something that we have somehow managed to avoid over the last two years.  But Beckett has been on the verge of a G-tube since he was 4 weeks old...perhaps it is time to just do it. We have worked so hard to avoid it.  But as someone who known Beckett's health since infancy, Dr. C has a good idea of Beckett's body's tendencies. I do trust that he and Dr. S will be able to work together to best meet Beckett's needs.

While we were driving home...and it is a long drive...I was thinking about all of the traveling we have been doing for appointments since January and how hard it can be at times to make the trips.  But then I thought, wow, how blessed are we to have 2 pediatric motility specialists who know our son and are willing to work together to figure out what needs to be done for this very out-of-the-norm case.  That is pretty awesome when you sit back and think about it.  I believe there are 4 or 5 pediatric motility specialists in the state.  Two in Houston, one in Ft. Worth, one in Dallas, and I am not sure about Austin... They are not a really common specialty, while it is growing.  So I am thankful to have two to call.  Two opinions.  That's gotta be a good thing, right?

Monday, it is back to Dallas! Ey yi yi... He needs to have another contrast enema done for the surgeon.  So we will hit the road again. But I know it will all be worth it.  It will be worth it to get some relief for the sweet child.  Please continue to pray that all the right decisions are made regarding the surgery.  Please pray for wisdom, patience, and endurance.  And of course, for safety in all our travels.  Thanks so much for checking on our little B!

Beckett enjoyed a bowl of Watermelon Sorbet for a special treat last week.  It was his first time to eat a bowl of a cold treat, and he enjoyed it!  We will definitely go back for more!