As we were driving through downtown Cincinnati yesterday morning, all I could think was that I could not believe we are here. Don't get me wrong, Cincinnati is a wonderful place to visit and we have enjoyed some fun touristy things while we have been here. But I never really saw myself here--miles from MY normal. This last year has pushed our family out of what we knew as normal in several ways, and there is just nothing normal about taking your one year old halfway across the country for medical treatment. Nope, not normal. Blessed to be here and surrounded by caring, helpful people, but still, it doesn't feel normal.
Today, we were able to see the very experienced director of Motility Disorders at Children's. He was very helpful in looking at Beckett--the whole child. He did not just focus on his poor GI motility but tried to put the whole puzzle together. He examined Beckett's developmental abilities and coordination. And in putting together this precious puzzle, he feels it is necessary for Beckett to have a brain and spinal MRI, along with more blood and urine testing. This means more anesthesia for our little guy. The MRI is scheduled for Friday at 1:30 pm, and yes, he must fast for 8 hours leading up to it...not easy even for a kiddo with gastroparesis.
Please be praying for sweet Beckett as he is put under anesthesia once again for this MRI. Please also pray for accuracy in testing. The goal for the urine test is the "first" urine of the day...how this is possible in a baby who wets throughout the night and day, I do not know...So I hope it is still as accurate as needed. Some of the specific diagnoses that they are considering for Beckett can have a lot of gray area and are difficult to diagnose. So we pray for definite and clear, accurate results. We are hopeful that it will all be negative. Please join us in lifting Beckett up in prayer throughout the testing process. It is hard on a little guy. Please continue to pray for all the doctors and professionals involved--that they are careful and thorough. Please pray for hubby and me as we continue to walk through the unknown and new territory of taking care of a child with chronic health concerns. Thank you.
But Jesus immediately said to them: "Take courage! It is I. Don't be afraid."
Lord, if it's you," Peter replied, "tell me to come to you on the water."
"Come," he said.
Then Peter got down out of the boat, walked on the water and came toward Jesus. But when he saw the wind, he was afraid and, beginning to sink, cried out, "Lord, save me!"
Immediately Jesus reached out his hand and caught him. "You of little faith," he said, "why did you doubt?"
Matthew 14:27-31
Today, we were able to see the very experienced director of Motility Disorders at Children's. He was very helpful in looking at Beckett--the whole child. He did not just focus on his poor GI motility but tried to put the whole puzzle together. He examined Beckett's developmental abilities and coordination. And in putting together this precious puzzle, he feels it is necessary for Beckett to have a brain and spinal MRI, along with more blood and urine testing. This means more anesthesia for our little guy. The MRI is scheduled for Friday at 1:30 pm, and yes, he must fast for 8 hours leading up to it...not easy even for a kiddo with gastroparesis.
Please be praying for sweet Beckett as he is put under anesthesia once again for this MRI. Please also pray for accuracy in testing. The goal for the urine test is the "first" urine of the day...how this is possible in a baby who wets throughout the night and day, I do not know...So I hope it is still as accurate as needed. Some of the specific diagnoses that they are considering for Beckett can have a lot of gray area and are difficult to diagnose. So we pray for definite and clear, accurate results. We are hopeful that it will all be negative. Please join us in lifting Beckett up in prayer throughout the testing process. It is hard on a little guy. Please continue to pray for all the doctors and professionals involved--that they are careful and thorough. Please pray for hubby and me as we continue to walk through the unknown and new territory of taking care of a child with chronic health concerns. Thank you.
But Jesus immediately said to them: "Take courage! It is I. Don't be afraid."
Lord, if it's you," Peter replied, "tell me to come to you on the water."
"Come," he said.
Then Peter got down out of the boat, walked on the water and came toward Jesus. But when he saw the wind, he was afraid and, beginning to sink, cried out, "Lord, save me!"
Immediately Jesus reached out his hand and caught him. "You of little faith," he said, "why did you doubt?"
Matthew 14:27-31
We are thankful to our Lord and Savior who saves us, who reaches out his hand and catches us when we are distracted by the winds around us, full of fear and miles from normal.
Here are some pictures of the fun, touristy things we were able to do this weekend. We really have had a nice time between all the appointments and tests! It is a wonderful place to come visit!
