Busy Week

In the last 8 days, Beckett saw a doctor on 4 seperate occasions. That's a total of 4 waiting rooms with a toddler (and sometimes a preschooler)and 4 panic attacks (well, not really...but tears were shed) for my little guy. In addition to those 4 appointments, we also squeezed in a visit with the home health nurse, his ECI case manager, his developmental therapist, and his speech language pathologist. And finished the week off with a quick trip to the lab at the hospital downtown. And we somehow managed a parent-teacher conference at Brant's school, as well as baking and taking cupcakes to school to celebrate Brant's birthday--which isn't until the summer, but we wanted to get to celebrate at school! Whew! What a week!

Here's the big update: at the end of the week, the doctors decided to let Beckett try the next two weeks without his feeding tube. Yay! This all started when he realized that he could pull out his own NG tube! And the result of pulling out the tube for a congested toddler? Easier breathing! So he got that figured out, and I knew it was going to be hard to keep that sucker in! After some discussion, our pediatrician and GI decided to let Beckett try out the next couple weeks without the night time continuous feeds. I am so very thankful that his feeding tube was able to help him grow and give him some extra energy to learn new things.  Most people who have known him and see him now comment on how good he is looking.  But, we are hoping that now that his enzymes are well established (and seem to be helping greatly with his digestion!), he will be able to gain and maintain his weight without the tube. We are excited about this step! Putting him to bed seems so simple now.  I think I appreciate things that I never really thought to appreciate much before...like the idea of wearing footie zip-up jammies without having to cut a hole and figure out where the tube is going to come out.  Sometimes, it's just the little things, ya know?

And the slight downside of the week: his bad virus turned into an ear infection (even with those tubes!) and sinus infection. Sooo...back on antibiotics. No biggie really. Just wish that he could catch a break from all the little infections.  It tends to affect his tummy when he has to be on antibiotics.

Beckett has been feeling a bit under the weather lately, but he is such a trooper. He is so tough and I am so proud of him! He is learning new things and has started saying "mama" regularly. It is such a sweet word! I love it, and am so thankful. He slightly over generalizes and calls other women, "mama" but I am still thrilled! When we go to the grocery store, he waves his hand at everyone he sees. He is very friendly and outgoing. He tends to make everyone around him smile- even with a runny nose!

Thanks so much for checking on Beckett and for praying for him. We appreciate your prayers. He seems to be doing all-around really well these days, and we are so thankful for that!

~Kaylan