Yay Three!

Our little man turned three yesterday! We are so proud of him! He is such a precious gift, and we are truly blessed by him. He has come so far over the last year and so much has happened!  I will post pics and document more about his third birthday very soon!

Beckett has been doing very well with his new flush routine. After a rocky first 6 weeks post-op, we are so thankful for how smoothly things are going now.  Over the last several days, he has started having more leakage, so we are going to address this with the doctor tomorrow. It is not as severe as it was last month, but it is definitely starting to "flare up" again.

Tomorrow we have our first appointment at the Cystic Fibrosis clinic in Dallas. We are thankful that they were willing and ready to see Beckett and his unique case.  We think it will greatly benefit his care to see all of his specialists in one location. This way they will be able to work together in an easier, more convenient and quicker way to do what is best for Beckett. It is also waaaay closer to us which equals less drive time and less gas money. So we are excited for this change. I am just praying the transition goes smoothly, especially with his rare presentation.  I am not sure what to expect as all CF clinics apparently have different protocols and ways of doing things.  I am also unsure of what their evaluation of Beckett's diagnosis will be.  So I am anxious to get to the appointment and get their opinion on what direction we need to go with treatment for him.  When Beckett was inpatient in July, we got to meet the CF GI specialist.  This is a GI dr that specializes in kids with Cystic Fibrosis. I am thankful that we have gotten to meet and she has had a sort of "preview" of Beckett.  The CF clinic in Dallas involves appointments with both a GI and a pulmonologist so we will be seeing both tomorrow. This is new for us because the Houston CF clinic only involves the pulmonologist. I think this will be of great benefit to him seeing as how he is so GI involved. I am thankful for this opportunity to see such a specialized specialist.

Thank you so much for your continued prayers for us. Beckett is doing so incredibly well. His energy level has increased, he just seems so happy. We are very thankful for how he is doing. Please pray for his appointments tomorrow. We also have his "well-child" appointment and an appointment with a new endocrinologist coming up next week, so lots of appointments these next couple weeks. Thanks you so much for checking in and for your prayers.