Our Week in Pictures

Our week in pictures...more words will follow later after I get a little more sleep!

 I can't explain how much I miss this guy when we are away.  I think it must be one of the most torn feelings in the world--to have one child at home and one child in a hospital hours away. It is very hard and challenging. We went out for a little mommy/son date before Beckett and I left.

 

 On Tuesday, it was nothing but liquids and popsicles.  Then once they started the go-lytley clean out, he could have nothing by mouth until Friday at lunch time.

 

 It took an extra 24 hours and 3 gallons of golytley and 2 enemas to get his colon cleaned out...and a few doses of Zofran for nausea.  His belly was miserably huge and hard. On Wednesday, he actually weighed 4.4 lbs more than he did just the day before on Tuesday.  That is about a 20% weight increase over night.

 Finally, sleep. But he was woken up every hour for either an enema or an IV or an x-ray or something...It was a long night. He is so tough.  Can you imagine being woken up to get an enema? or poked by the IV team?  I really am amazed at his ability to persevere and acclimate.

 Getting out of bed for a bit.

 

 He loved watches all the cars go bye.  He was very excited to see them as we couldn't see any cars from our room this time. It was hard to get him to leave this little spot.

 

Playroom Fun

 

 

 Worn out from the middle of the night enemas and clean out

 

 Waking up in recovery after his colonoscopy, endoscopy, and placement of the probe in his colon.  From this point on he had to stay flat in a bed for the next 30 hours.

 

 The hospital gave him this big stuffed Yo Gabba Gabba friend.  He calls him "Boca Boca."

 

 He slept most of the day on Wednesday.  He could stay awake for about 20 minutes at most before he would fall back asleep.  He ended up running a fever, but it did drop quickly.

 

 He woke up and realized how miserable he was...

so he went back to sleep.

 

 Sleeping in a big boy bed for the first time ever!

 

 Precious, resilient, tough.

 

Stickers Anyone? :)

 

 Friday evening---Going HOME! He said, "so cited mama. so cited!" (So excited)

Precious boy. His song for the week:

 

Whom Shall I Fear by Chris Tomlin

 

 ...Whom shall I fear

I know Who goes before me
I know Who stands behind
The God of angel armies
Is always by my side

The one who reigns forever
He is a friend of mine
The God of angel armies
Is always by my side