We had our meeting with the pediatric surgeon yesterday and now have a very short term plan...like as in we know what will be happening on Monday. Not too much after that. It is definitely a day by day process.
Monday morning, B will have a full tissue biopsy. This is a biopsy that requires him to be under anesthesia, and he will be admitted for observation for the night. The biopsy is being done to be 110% sure that he has Hirshsprung's Disease before they do the operation. The doctor said that with an operation like this, you just have to be completely certain. The surgeon felt confident that B has short segment if he has it at all. It is possible to have a sort of "false positive" on the suction biopsy (the type of biopsy he had last Monday). So this biopsy will confirm the diagnosis, and help the doctors know what area is affected.
Our surgeon was very knowledgable on Hirshsprungs. He took his time thoroughly explaining the disease, how it affects the body, and how surgery is the only treatment. He was patient with us and gave us opportunities to ask questions. However, as always, I didn't think of the good questions until after we left our appointment...that tends to happen to me. We feed confident in the doctor's knowledge and experience. Despite that confidence, we remember that doctors are still human. So we pray for our doctors, pray that they will be cautious, wise and thorough.
B has been pretty happy lately. He is fascinated by his feet! He loves to play with them, watch them, and of course, chew on them. He has a big smile most of the day. He continues to roll around to his sides, but rarely does he want to roll all the way over to his tummy. And when he does roll on to his tummy, he quickly becomes frustrated and either flips back over, or screams for me to help him. He like standing in his excer-saucer and watching his big brother. He is growing and developing in so many wonderful ways, and we are so thankful for that.
Thank you for your prayers for our sweet little man. Please continue to pray for him, our family, and the doctors. Please pray that the doctors are thorough, and we are able to get a certain diagnosis (one way or the other), and that the doctors have confidence in whatever care needs to follow. Please pray for the procedure on Monday...that B would do well, and his body would recover well, and that we would feel peace. Thanks for checking in and thank you for your prayers.
I will get around to posting pictures soon...promise.
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