Thursday, March 31, 2011
GI Appointment
I made the trip back to the medical center on Tuesday to see our GI for our regular ,every 6 weeks follow up appointment. It was good timing because we had just gotten the results to his full tissue biopsy, and I was eager to talk to a doctor about it and what needs to happen next. So, as I said in my last post, B's full tissue biopsy was not conclusive of Hirschsprung's Disease. He does have ganglion nerves and HD is an complete absense of the ganglion nerve cells or whatever they are exactly. However, and this is a big however, our doctor explained to me that the ganglion nerves in his colon are abnormal. They are not what they should be, therefore, I guess they could be not operating in their full capacity, if at all?? So, our GI, is passing us over to the GI at TCH who is a motility expert. Motility is the way the food moves through the GI system. With this abnormality, it seems as though he must have a motility problem. We can expect that he will do some motility testing, and we will go from there. Our appointment with him is towards the end of April, so until then, we will wait. We have a lot of unanswered questions right now. But I wanted to try to give you an update despite my lack of information and knowledge. Hopefully, after I get a little rest, I can post a good 6 month birthday post with some pics. So check back in later!
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