Hirschsprung's

As I said in my last post, All Too Familiar, we know more about TCH than I ever expected to know. And it looks like we are going to be getting to know it better. We will now be learning about the 8th floor of the Clinical Care Center when we meet with a pediatric surgeon. Let me back up...

Little one has been severely constipated. And I am not talking about the typical baby constipation, I am talking laxatives-and-suppositories-don't-work constipated accompanied by much discomfort and crying (the crying is by both of us). So as I mentioned earlier, the doctor recommended a test for Hirschsprung's Disease. Hirschsprung's is when the nerves in the colon do not develop to tell food to go through basically from what I can understand. If I was fancy and computer savvy, I could post a link to what it is...but I don't know how to do that yet. So feel free to google it. :) The GI explained it in a much more in depth way, but that is the general info. On Monday, little man had a manometry done where they test to see how the colon responds. B was squirmy and not real cooperative (who would be?), so the doctor decided to go ahead and biopsy the colon.

Wednesday evening, his GI doctor called and said that the biopsy results were abnormal and pointed towards this Hirschsprung's. She said we need an appointment with a pediatric surgeon as a next step to confirm the diagnosis and the area affected. She said that there may be more steps after that, but it looks as though eventually he may need surgery to remove the affected part of the colon. Hirschsprung's can affect either part or all of the colon, and our doctor believes it is only partial in his case. There is still a lot of unknown, so there is still a lot of waiting and wondering. Our appointment with the pedi surgeon is next Thursday morning. It looks as though we may be learning about a piece to the puzzle of Beckett's health. We are thankful for knowledge, but fearful of the unknown.

Thanks for your prayers for our sweet baby and our family. Please continue to pray for Beckett's health and the doctors' wisdom. Please pray also for precious big brother. One of the biggest challenges right now is balancing Beckett's care with Brant's needs as an active 3 year old. I pray that we are able to balance the two boys and meet their very different needs. I pray that Brant does not feel lost in it all and that he continues to be resilient. I have been so proud of how he has handled on the change around him. He is such a special little boy. I pray that I can find the energy to be the mom that he still needs me to be.

Thanks for checking in on us and we really appreciate your prayers during this time of waiting for what's next.