Friday, January 27, 2012

Health Updates

Sorry for the delay in posting. Last week was a bit crazy, and all I really wanted to do in the evening was be lazy! :) Beckett's appointments went very well. Our appointment with the cardiologist was quick and simple. He actually didn't even do an echo cardiogram after all because he felt very confident that Beckett's heart was healthy. He even told us that he can tell us with 100% certainty that our little boy's heart was just fine. We are so thankful.

We also got the results to Beckett's sweat test (one of the tests for Cystic Fibrosis), and once again, they were normal. However, due to Beckett's symptoms as well as growing research in the area, we are still going to treat him with the enzyme trial. We have not been able to start them yet. The CF doctor in Cincinnati has been wonderful to work with, and he has discussed it with our pediatrician and is working to contact our local GI doctor to close the loops. We hope for everything to get worked out so that we can start Beckett on the enzymes very soon.

We have finished the most recent treatment for Beckett's c.diff, and now it is just a waiting game to see if it stays away. Please pray that it is gone and stays gone!

We have another motility test coming up. It's called a sitzmarker study. The goal is that Beckett would swallow a large capsule full of tiny rings, and then using radiology, the rings will be followed throughout his colon. As a one year old, he cannot swallow the capsule, so we will open it up and put all the little rings in a single bite of purees and hope to goodness that he swallows all of them. Eek. It should be interesting and perhaps will shed more light on the actual functioning of his colon and why it doesn't seem to work. If the testing shows something, we will follow up with more testing. I realize that is quite vague but that's about all I know right now. :)

Last weekend, hubby and I took the boys to the "Dinosaur Museum." Brant had a blast! I think Beckett enjoyed it, too. :) He tells people that he wants to be a paleontologist when he grows up, and the looks on people's faces are priceless. I will post pictures of Brant with all the dinosaurs and more details next time. He is so fun, and I am enjoying watching him grow and learn so many new things. We are so blessed to have a growing little boy who is always eager to know more. More on Brant, more pictures, and more on enjoying the later preschool years next time!

Thanks so much for your prayers for our family. Specifically, please pray that everything would get taken care of so that Beckett can get started on the enzyme trial. Pray also that the c.diff is gone and will stay gone. Please pray as we continue to do more testing and meet with more specialists. Praise God that our sweet boy is sleeping through the night! Big step for us! I won't delay nearly so long next time. As soon as I get those pictures uploaded, I'll be here! I also must share my new hobby with you soon!

Love-

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