Growing Boy!

Whoo Hoo! We have a growing boy! I don't think I will ever look at the comment, "They grow up so fast" the same way again. What an amazing blessing, something that seems so simple...to grow. We are thankful.

We saw Beckett's GI doctor on Thursday, and we was very pleased with Beckett's growth over the last month. We are going to continuing feeding him through his NG tube at night and hope that this trend will continue and that his height will pick up soon. He also seems to have much more energy and is learning new things! We are still dealing with some tough problems with his bowels and subsequent diaper rash. Diaper rash is really an understatement and doesn't seem to be the right term. He still cannot have a bowel movement without medical intervention, but we can see so much improvement in his quality of life since our trip to Cincinnati. We also are now starting the pancreatic enzymes used in treating Cystic Fibrosis in hopes that they will help with his growth as well as some of his stooling issues. We are hopeful that we will see results from these enzymes. Click here for more on the enzymes. If they are successful in helping his body use the calories more efficiently, perhaps we will be able to pull the NG tube feeds soon. That is just a hope/guess on my part at this point. We definitely see the benefits from the feeding tube in his growth, energy, and overall well being, but we do hope that it is not needed long term.

He had some blood drawn for a genetic test last week, and the lab accidently froze some of his blood. :( So we are headed back to the hospital tomorrow to draw more blood and give a urine sample. This is also a re-do urine test as the first one had some abnormalities that need to be double checked. They feel as though our outcome should be normal a second time around. We frequent that hospital just about once a week. I am so thankful that we moved closer! God is awesome.

Please be praying for all of the testing that is still going on. This has been a year and a half of test after test. I don't mention all the testing on here as it seems quite endless at this point. The testing is a bit exhausting. Please pray that the results of each test would be very clear and that all hands involved would know just what to do with it all.

Thanks so much for checking in on everything! I hope to post more frequently this week. Have a good week!